LAA National Lupus Survey
38 questions, less than 30 minutes of your time, over 1.5 million Americans helped. Let Your Voice be Heard!
The Lupus Alliance of America National Survey is done. We anticipate the results will be released in late fall.
Thank you so much to the over 1,600 people that particpated in the survey!
Thank you to all the bloggers, group owners on facebook, website owners, and followers on facebook and twitter that posted and reposted the information on our survey to help us spread the word about the survey!
We believe the results when published will help us give a more accurate portrayal of the struggles of those living with lupus, as well as supply more accurate data on medication use, diagnosis and more
Be sure to keep a look out on our website, facebook and twitter for details on when the results will be published! Thank you again for your support
The results of this survey will not only help the Alliance learn what those living with lupus need and want, so they may meet those goals, but will also help them obtain state and federal resources for advocacy, awareness, research and more.
By participating in the survey, you will help us to:
- Understand individuals living with lupus.
- Create better education and support forums for patients, their families and communities.
- Provide data that will help all of us obtain local and state resources for patient education, awareness and advocacy programs.
All of the completed surveys hve been analyzed with the assistance of faculty members at Long Island University, C.W. Post Campus, who have donated their time and expertise.
Findings from this survey will be made available via the Lupus Alliance of America website, newsletters, public service announcements and sponsoring research institutions. Should any questions or concerns arise, please call the Lupus Alliance of America at (866)415-8787 or click here to E-Mail Us
Attention Lupus Bloggers
If you have a blog about lupus, or other autoimmune diseases, we ask you to help us spread the word about this important survey, by placing a logo and/or link on your site. Be sure to contact us through email at: lupus alliance.
Please visit our Survey thank you page where all of those who have helped us from design to distibution are listed as our way of saying thank you for helping us spread the word about our survey and spread awareness about lupus!